After we got home from the hermana's conference, I noticed some imessages from Jones family and an email from Laura that says, "Call, me." I immediatly facetime and Summer's face pops up on the screen and it appears that she is in a hospital! From this point I will use Summer's post on Facebook and then share our feelings.
"hey yall. I know a bunch of you have been worried about me and this is my update to you. for those of you who dont know, I've been in the hospital for the past 3 days. they admitted me after some blood work came back kinda funky about my muscles. for the past 4 months, I've been getting progressively stiffer and weaker and when it got to the point where I couldn't bend my fingers anymore, that's when my mom took me in. we got blood work done, then that came back all wonky so I went into the rheumatologist on Tuesday. I got diagnosed with arthritis, and got more blood work done. then, when I went to girls camp on Wednesday, 2 hours into it my mother called and told me they called and wanted me admitted to the hospital because my muscles are so inflamed and they basically eating themselves (breaking down). so I got to go to girls for a whopping 2 hours. on Wednesday they took blood work and hooked me up to iv to keep my kidneys working full time to reduce the risk of them breaking. thursday I got an mri to look at the fascia in my body. fascia is the tissue that keeps things together. Friday, today, they woke me up and told me not to eat anything because blood work came back negative for mixed connective tissue disorder. so today, I had a muscle biopsy done on my left thigh, and then I got diagnosed with fasciitis(inflammation of tissue surrounding my muscles), myositis(inflammation of the muscle), tenosynovitis(inflammation of the lining of the tendon), and arthritis. anyway, that's just my super long update for anyone that was wondering. I should be going home on Sunday, I just need to get through 3 rounds of high dose steroids for my pain. I've got one down, 2 to go! :) keep moving forward. being positive is key."
Laura (her mom) posted: Thursday, July 16
"Thank you for all the prayers and support we have
received from everyone. Summer's in good spirits. For those who don't know she
was admitted to Primary's for some further testing for a possible autoimmune
disorder. We should hopefully have some test results back in the morning, then
we can start treatment."
My thoughts through this long week:
Wednesday night the thought of Summer having "mixed tissue connective disorder" was heart wrenching as it would be for anyone involved. Once again I felt that I was so helpless, being so far away. Mike and I both cried. We turned to our Heavenly Father and pled with Him to help heal our beautiful granddaughter. We asked Him to wrap His arms around Summer and give comfort and
strength to Dale and Laura and Kira.
Thursday we waited all day for test results of whether or not she truly had MTCD. We were working 3 hours away from Montevideo, moving elders. But, we received no answers on Thursday.
Friday we were still moving elders and Summer was scheduled for a muscle biopsy surgery in the afternoon. After she went in, Laura and I finally were able to talk and she said that her test results from yesterday came back NEGATIVE! Summer does not have MTCD. Instant relief flooded me and I said a prayer of thanksgiving.
What she does have is still very serious, but manageable with steroids and it is highly probable that this might never come back.
My thoughts that came to me were this. We probably will not know in this mortal life exactly how Heavenly Father intervened this week. Maybe He did heal her of MTCD. But mayber she never had it in the first place and His directing the medical staff to a quick diagnosis for a quicker healing was the blessing.
I know that the miracles of healing do not happen for everyone. I also know that He is a Loving Father and will always help us if we but ask. But when we ask we have to also never doubt that He knows more than us and accept whatever He knows is best for us. That is always the hardest question to answer. Elder Bednar gave a powerful talk a few year ago, "Do You Have the Faith Not to Be Healed?" As Summer so wonderfully stated: Keep moving forward, being positive is key.
Thank you to all my wonderful family who helped with watching children and visiting with Summer. I knew the Jones' family was in good hands, even though my own hands could not be there.
Working in the Lord's vineyard has been a wonderful blessing for us and our family. We love our mission.
Summer went home with crutches today, Sunday July 19.
Summer went home with crutches today, Sunday July 19.
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